This year, the International Myeloma Foundation invites YOU to share your personal #MyelomaMilestone<\/strong> and be empowered in our collective fight against multiple myeloma.<\/p>\n Whether it is a significant treatment breakthrough, overcoming a tough challenge, traveling to a long-awaited destination, learning a new skill, or simply enjoying a precious moment with loved ones\u2014every milestone, big or small, is worth celebrating.<\/p>\n Through collaboration, advocacy, and education, Myeloma Action Month helps inform the public and empower individuals affected by myeloma. Together, we work toward better treatments, enhanced patient outcomes, and eventually, a cure.<\/p>\n 2025: A Year of Milestones for the IMF<\/strong><\/p>\n For MAM 2025, the IMF is celebrating progress, resilience, and hope through the #MyelomaMilestone<\/strong> campaign.<\/p>\n The IMF will be celebrating a major milestone this year: its 35th<\/sup> anniversary in October, and more years of inching closer to our vision: \u201cA world where every myeloma patient can live life to the fullest, unburdened by the disease.\u201d<\/p>\n \u201cMyeloma Action Month is a powerful global movement that brings the myeloma community together to take action and raise awareness. This year, in conjunction with the IMF\u2019s 35th Anniversary, we invite individuals to share their most meaningful myeloma milestones\u2014celebrating resilience, strengthening connections, and inspiring hope. Myeloma has no borders, and together, we will make a global impact, as we march toward a cure,\u201d said IMF Vice President of Marketing Peter Anton.<\/p>\n Why Every #MyelomaMilestone Counts<\/strong><\/p>\n Every milestone your share helps raise awareness and creates positive change in the fight against myeloma. Here are the reasons why your milestones matter:<\/p>\n Take Action: Share Your #MyelomaMilestone in Social Media<\/strong><\/p>\n If you have not done so yet, follow the International Myeloma Foundation on our social media channels and reshare, like, and comment on awareness content throughout Myeloma Action Month to amplify the message.<\/p>\n To share your #MyelomaMilestone on social media, follow these simple steps:<\/p>\n 1. Get Your Fillable Handheld Sign<\/strong> 2. Write Your Milestone or Message of Support<\/strong> 3. Share Your Story<\/strong> 4. Post and Spread the Word<\/strong> By using the #MyelomaMilestone<\/strong> hashtag, you are helping us amplify the message that every milestone matters in the fight against this disease. Your story can inspire others and show the world the power of perseverance and community.<\/p>\n Help create a world where people are diagnosed earlier, experience better treatment outcomes, find the resources and support they need to live well, and drive research to cure multiple myeloma.<\/p>\n To access and download the 2025 Myeloma Action Month campaign resources and tools, visit myelomaactionmonth.org.<\/a><\/p>\n Participate in IMF Events Happening all throughout MAM 2025<\/strong><\/p>\n The IMF invites you to actively participate in the following events all throughout March.<\/p>\n Facebook LIVE Events<\/strong> <\/strong> Q&A: Ask Me Anything About Myeloma with Dr. Saad Usmani<\/strong><\/a> Q&A: Ask Me Anything About Myeloma with Dr. Joseph Mikhael<\/strong><\/a> Q&A: Ask Me Anything About Myeloma with Dr. Urvi A. Shah<\/strong><\/a> Patient Meetings and the Miracles for Myeloma 5K Run\/Walk <\/strong> March 4 \u2014 Virtual Myeloma Community Workshop<\/strong><\/a> Date: Tuesday, March 4, 2025<\/strong> Connect with myeloma specialists and experts through a panel Q&A, where panelists will address questions specific to those newly diagnosed with the disease. <\/p>\n March 14-15<\/strong> \u2014 In-Person Patient and Family Seminar, Boca Raton, FL<\/strong><\/a> Date: March 14-15, 2025<\/strong> The 2025 Boca Raton Patient and Family Seminar will cover a variety of topics, including:<\/p>\n March 15 – Miracles for Myeloma 5K Run\/Walk, Boca Raton FL<\/strong><\/a> Take strides toward a cure for multiple myeloma. Your participation supports critical research initiatives like the Black Swan Research Initiative\u00ae, propelling us closer to groundbreaking treatments and better outcomes for myeloma patients.<\/p>\n March 20\u2014 Living Well with Myeloma Webinar: Why Clinical Trials are Important for You!<\/strong><\/a> International Myeloma Foundation (IMF) Vice President of Patient Support Robin Tuohy will moderate presentations and discussions with IMF Chief Medical Officer Joseph Mikhael, MD, Med, FRCPC, FACP, and SparkCures<\/strong> Founder Brian McMahon.<\/p>\n Topics for this upcoming LWM webinar include: <\/p>\n Demystifying Clinical Trials<\/strong> <\/p>\n The Importance of Participation from Underrepresented Communities<\/strong> <\/p>\n SparkCures Update and Platform Guide<\/strong> <\/p>\n March 29 \u2013 In-Person Regional Community Workshop, San Francisco, CA<\/strong><\/a><\/p>\n The International Myeloma Foundation (IMF) is excited to announce that an in-person Regional Community Workshop will take place on March 29, 2025, in San Francisco, CA.<\/strong><\/p>\n Date: March 29, 2025<\/strong> The workshop will include an introduction to myeloma, upfront treatments at diagnosis, maintenance therapy, relapse information, and an update on clinical trials. A member of the IMF Nurse Leadership Board will talk about managing side effects and symptoms of myeloma and its treatments. After each presentation with the experts, attendees will have ample time to ask questions.<\/p>\n Connect with local myeloma specialists and experts who will address needs specific to communities in San Francisco, CA.<\/p>\n Join the Movement for Myeloma Action Month 2025!<\/strong><\/p>\n March is Myeloma Action Month (MAM) is the IMF\u2019s month-long initiative dedicated to raising awareness and inspiring action within the myeloma community. Over the years, Myeloma Action Month has grown to become a global effort, reaching over 50 million people across 36 countries. This year, we need your help to make an even greater impact.<\/p>\n Together, let us make Myeloma Action Month a viral movement and show the world the strength of the myeloma community!<\/p>\n The IMF is grateful to the following Sponsors for supporting Myeloma Action Month: Amgen<\/a>, Binding Site<\/a>, Bristol Myers Squibb<\/a>, GSK<\/a>, Johnson & Johnson<\/a>, Karyopharm Therapeutics,<\/a> Pfizer, Inc.<\/a>, Regeneron<\/a>, and Sanofi.<\/a><\/p>\n For additional information about Myeloma Action Month, please visit myelomaactionmonth.org<\/a>. <\/p>\n ABOUT MULTIPLE MYELOMA<\/strong> ABOUT THE INTERNATIONAL MYELOMA FOUNDATION<\/strong> Follow the IMF on: Media Contacts:<\/strong><\/p>\n Peter Anton\n
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This year, we are asking you to join the movement by using our fillable handheld sign<\/strong>.<\/a> This sign gives you the opportunity to share your unique milestone, and we need you to take part in this powerful awareness tool. Download the sign at myelomaactionmonth.org<\/a><\/p>\n
Take your sign and write down a meaningful milestone or impactful moment from your myeloma journey\u2014or a message of encouragement for others. This could be a personal achievement, like overcoming a tough challenge, celebrating a special moment with family, or even taking a new step in your treatment plan.<\/p>\n
Take a photo or video with your sign. If you are doing a video, talk about why your milestone is important to you and encourage others to share their stories to help raise awareness.<\/p>\n
Post your photo or video on social media. Do not forget to include the hashtag #MyelomaMilestone<\/strong> so we can track the success of the campaign and help it reach more people.<\/p>\n
The IMF will host Facebook Live Events with key figures in the myeloma community including healthcare professionals and educators. During these Facebook LIVE Events, the myeloma community will learn about the latest research and treatments, disparities in healthcare, the benefits of good nutrition, a holistic psychosocial approach to self-care, and more. The FB Live Events are scheduled as follows:<\/p>\n
Thursday, March 6
4pm PST\/7 pm EST<\/p>\n
Saturday, March 15
10am PST\/1pm EST<\/p>\n
Tuesday, March 25
4pm PST\/7pm EST<\/p>\n
The IMF will host several in-person and virtual patient meetings in March, as well as the Miracles for Myeloma 5K Run\/Walk event.<\/p>\n
This Virtual Myeloma Community Workshop will focus on topics concerning newly diagnosed myeloma patients, including an introduction to myeloma; management for the newly diagnosed not going through transplant; as well as transplant eligibility, logistics, and planning for the newly diagnosed. A member of the IMF Nurse Leadership Board will discuss side effect management and patient empowerment. After each presentation with the experts, attendees will have ample time to ask questions. <\/p>\n
3:00 p.m. \u2013 6:00 p.m. PST\/4:00 p.m. \u2013 7:00 p.m. MT<\/strong>
5:00 p.m. \u2013 8:00 p.m. CT\/ 6:00 p.m. \u2013 9:00 p.m. ET<\/strong> <\/p>\n
The International Myeloma Foundation (IMF) is excited to announce that the 2025 Boca Raton Patient and Family Seminar will take place on March 14-15, 2025, in Boca Raton, Florida. The seminar is FREE, but in-person seating is LIMITED.<\/p>\n
Venue: Boca Raton Marriott at Boca Center<\/strong>
Location: 5150 Town Center Cir. Boca Raton, FL 33486<\/strong><\/p>\n\n
Join us for the Miracles for Myeloma 5K Run\/Walk on Saturday, March 15, 2025, at the Boca Raton Marriott \u2014 the same place we are hosting our PFS seminar!<\/p>\n
The Living Well with Myeloma Webinar will include a summary discussion and a Live Q&A, offering attendees an opportunity to address specific concerns. Please join us for this informative session focused on the importance of clinical trials. <\/p>\n\n
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Venue: Grand Hyatt at SFO<\/strong>
Location: 55 S McDonnell Rd, San Francisco, CA 94128<\/strong><\/p>\n
Multiple myeloma is a cancer of the bone marrow plasma cells \u2014 white blood cells that make antibodies. A cancerous or malignant plasma cell is called a myeloma cell. Myeloma is called \u201cmultiple\u201d because there are frequently multiple patches or areas in bone where it grows. It often involves damage to bone and kidneys. Multiple myeloma is still incurable, but great progress has been made in terms of survival over the last two decades. The disease is twice as common and is diagnosed at a younger age in African Americans than white Americans. The most common presenting symptoms include fatigue and bone pain.<\/p>\n
Founded in 1990, the International Myeloma Foundation (IMF) is the first and largest global foundation focusing specifically on multiple myeloma. The Foundation’s reach extends to more than 525,000 members in 140 countries worldwide. The IMF is dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure by focusing on four key areas: research, education, support, and advocacy. The IMF has conducted more than 250 educational seminars worldwide, maintains a world-renowned InfoLine, and in 2001, established the International Myeloma Working Group (IMWG), a collaborative research initiative focused on improving myeloma treatment options for patients. In 2012, the IMF launched the Black Swan Research Initiative\u00ae, a groundbreaking research project aimed at curing myeloma. The IMF can be reached at (800) 452-CURE (2873). The global website is www.myeloma.org<\/a>. <\/p>\n
X (Twitter): @IMFmyeloma<\/a>
<\/a>Instagram: @imfmyeloma<\/a>
Facebook: @myeloma<\/a>
LinkedIn: International Myeloma Foundation<\/a><\/p>\n
Panton@myeloma.org<\/a><\/p>\n
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